CDC checklist for families to use in the event of a natural disaster or emergency: www.cdc.gov/ncbddd/ hemophilia/documents/familyemergencykitchecklist.pdf Hemophilia Treatment Centers (HTCs): www.cdc.gov/ncbddd/hemophilia/htc.html National Centers for Birth Defects and Developmental Disorders: http://www.cdc.gov/ncbddd/ hemophilia/people.html EMEDICINEHEALTH eMedicineHealth provides information on first aid, emergency care, and consumer health. www.emedicinehealth.com/hemophilia/article_em.htm
HEMOPHILIA FEDERATION OF AMERICA Phone: 202.675.6984
Toll Free: 800.230.9797 www.hemophiliafed.org
MEDLINE PLUS MedlinePlus gathers information from government health organizations to help answer health questions. MedlinePlus also has information about drugs, an illustrated medical encyclopedia, and the latest health news. www.nlm.nih.gov/medlineplus/hemophilia.html MEDICALERT FOUNDATION ® The MedicAlert Foundation provides information on how your child can get a medical-alert ID. www.medicalert.org/Main/ConditionsHemophilia.aspx NATIONAL HEART, LUNG, AND BLOOD INSTITUTE Diseases and Conditions Index (DCI). This online health index provides a quick and easy way to get complete and dependable information about heart, lung, and blood diseases and sleep disorders. www.nhlbi.nih.gov/health/dci/Diseases/hemophilia/hemophilia_what.html
THE NATIONAL HEMOPHILIA FOUNDATION Phone: 212.328.3700 www.hemophilia.org
WEBMD The WebMD staff works to provide the best health information available. www.webmd.com/a-to-z-guides/hemophilia-topic-overview
WORLD FEDERATION OF HEMOPHILIA USA www.wfhusa.org
The World Federation of Hemophilia (WFH) is an international not-for-profit organization. They are dedicated to improving the lives of people with hemophilia and related bleeding disorders.
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