References Manco-Johnson, M. J., Abshire, T. C., Shapiro, A. D., Riske, B., Hacker, M. R., Kilcoyne, R., . . . Evatt, B. L. (2007). Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. The New England Journal of Medicine , 357 (6): 535–544. Additional Resources Brown, R., & Cornett, J. (2002). The hemophilia handbook (4th ed.). Sandy Springs, GA: Hemophilia of Georgia. Butler, R. B., Crudder, S. O., Riske, B., & Toal, S. (Eds.). (2000). Basic concepts of hemophilia: A self-study and planning workbook for families with a new diagnosis of hemophilia . Atlanta, GA: Centers for Disease Control and Prevention. Canadian Hemophilia Society. (2010). All about hemophilia: A guide for families (2nd ed.). Montreal, Quebec, CA: Canadian Hemophilia Society. Christie, B. (Ed.). (2002). Nurse’s guide to bleeding disorders (3rd ed.). New York, NY: National Hemophilia Foundation. Hemophilia of Georgia. (1988). The hemophilia handbook . Sandy Springs, GA: Author. Kelley, L. (2007). Teach your child about hemophilia: From preschool to adolescence . Georgetown, MA: LA Kelley Communications. Mahlangu, J., Oldenburg, J., Paz-Priel, I., Negrier, C., Niggli, M., Mancuso, M. E., . . . Kruse-Jarres, R. (2018). Emicizumab prophylaxis in patients who have hemophilia A without inhibitors. The New England Journal of Medicine , 379 (9), 811–822. doi: 10.1056/NEJMoa1803550. National Hemophilia Foundation. (2016). Medical and Scientific Advisory Council (MASAC) recommenda- tion concerning prophylaxis. Retrieved from www.hemophilia.org/Researchers-Healthcare-Providers/ Medical-and-Scientific-Advisory-Council-MASAC/MASAC-Recommendations/MASAC-Recommendation- Concerning-Prophylaxis National Hemophilia Foundation. (2019). Steps for living. Retrieved from stepsforliving.hemophilia.org Oldenburg, J., Mahlangu, J. N., Kim, B., Schmitt, C., Callaghan, M. U., Young, G., . . . Shima, M. (2017). Emicizumab prophylaxis in Hemophilia A with inhibitors. The New England Journal of Medicine , 377 (9): 809–818. doi: 10.1056/NEJMoa1703068 Peyvandi, F., Mannucci, P. M., Garagiola, I., El-Beshlawy, A., Elalfy, M., Ramanan, V., . . . Rosendaal, F. R. (2016). A randomized trial of factor VIII and neutralizing antibodies in Hemophilia A. The New England Journal of Medicine , 374 (21), 2054–2064. doi 10.1056/NEJMoa1516437 Soucie, J. M., Nuss, R., Evatt, B., Abdelhak, A., Cowan, L., Hill, H., . . . Wilber, N. (2000). Mortality among males with hemophilia: Relations with source of medical care. The hemophilia surveillance system project investigators. Blood, 96 (2), 437–442. Soucie, J. M., Symons, J., Evatt, B., Brettler, D., Huszti, H., Linden, J., & Hemophilia Surveillance System Project Investigators. (2001). Home-based factor infusion therapy and hospitalization for bleeding compli- cations among males with hemophilia. Haemophilia, 7 (2), 198–206.
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