Although your child has this disease, he or she should be disciplined in the same manner as other children in the family, or in the way that was typical before the diagnosis. Having structure or a routine also helps you and your child during treatment. Many parents also say that teaching their child to swallow a pill (instead of having to take liquid medicine that tastes bad even with added flavoring) is a great help. Members of the healthcare team can help with this. Many children and their families have a difficult time with the changes that happen during treatment. We encourage you to share any concerns you have with your child’s healthcare team. There is support and help, and we want to help you. It is important to note that you know your child better than anyone; if you have concerns about your child or think “something just isn’t right,” it is very important to notify your healthcare team immediately. A parent’s intuition is usually right!
RESOURCES National Cancer Institute (www.cancer.gov) Clinical Trials registry (www.clinicaltrials.gov) Children’s Oncology Group (www.childrensoncologygroup.org) Cure Research (www.cureresearch.com) The National Children’s Cancer Society (www.nationalchildrenscancersocity.org)
IMPORTANT PHONE NUMBERS
14
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