Sickle Cell Disease Patient & Family Handbook

Sickle Cell Disease A HANDBOOK FOR FAMILIES

Updated by Beth Savage, PhD RN CPNP CPON® Barbara Speller-Brown, DNP MSN CPNP

Content Reviewers Steering Council

Parent Reviewer Audrey Williams

This handbook is published by the Association of Pediatric Hematology/Oncology Nurses (APHON) for educational purposes only. The material has been developed by sources believed to be reliable. The material is not intended to represent the only acceptable or safe treatment of sickle cell disease. Under certain circumstances or conditions, additional or different treatment may be required. As new research and clinical experience expand the sources of information available concerning the treatment of sickle cell disease, adjustments in treatment and drug therapy may be required. APHON makes no warranty, guarantee, or other representation, express or implied, concerning the validity or sufficiency of the treatments or related information contained in this handbook. APHON provides this handbook for educational use. Users may copy and distribute this material in unadapted form only, for noncommercial use, and with attribution given to APHON.