Rare Tumors Patient & Family Handbook

Rare Tumors A HANDBOOK FOR FAMILIES

Author Susanne B. Conley, MSN RN AOCNS CPON ®

Contributors Alberto S. Pappo, MD Carlos Rodriguez-Galindo, MD

Reviewers 2015–2016 Steering Council

ABOUT THIS COVER This cover is specially designed for your child to color and personalize. When your child finishes decorating the cover, return it to the clinic or doctor’s office where you received the handbook. Your child’s healthcare provider will then send it to APHON for posting on the APHON website. This handbook is published by the Association of Pediatric Hematology/Oncology Nurses (APHON) for educational purposes only. The material has been developed by sources believed to be reliable. The material is not intended to represent the only acceptable or safe treatment of rare tumors. Under certain circumstances or conditions, additional or different treatment may be required. As new research and clinical experience expand the sources of information available concerning the treatment of rare tumors, adjustments in treatment and drug therapy may be required. APHON makes no warranty, guarantee, or other representation, express or implied, concerning the validity or sufficiency of the treatments or related information contained in this handbook. APHON grants the purchaser of this handbook unrestricted permission to photocopy the handbook for educational use by the purchaser or the purchaser’s institution. Purchaser may not receive monetary gain from distributing photocopies of this product.