Rare Tumors Patient & Family Handbook

n PROGNOSIS STATEMENT Prognosis is a word that doctors use to describe what they believe the outcome will be for a patient, including the chances of recovery. Your child’s cancer prognosis is as unique as he or she is. There are many factors that affect survival outcomes. A child’s age at diagnosis, the extent of disease, genetic factors, infections, nutrition, delays in the timing of treatment, and how well your child’s body can tolerate chemotherapy and radiation all play an important role in the child’s long-term outcome. Because general statements about survival rates are just numbers, please talk to your medical team about your child’s individual prognosis and plan of care.

n ONLINE RESOURCES Children’s Oncology Group (www.childrensoncologygroup.org) CureSearch (www.curesearch.org) National Cancer Institute (www.cancer.gov)

n IMPORTANT PHONE NUMBERS

n NOTES

16

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