In spite of the disease, your child is still developing and learning. All children—sick and well—need love, attention, discipline, limits, and the opportunity to learn new skills and try new activities. As you begin to learn about your child’s new needs, it is important to remember that he or she still has all the rights of any growing, developing person. Many patients with rare tumors are adolescents, and this requires special considerations. Do not avoid using direct terms and explanations. Children will tolerate treatment better if they understand it and are allowed to be active decision makers whenever possible. The same is true for parents.
n IS MY CHILD’S DIET IMPORTANT DURING TREATMENT?
Yes. We know from research that well-nourished children tolerate therapy better and have fewer treatment delays because of illness. It may be diffi- cult for your child to resume normal eating habits while receiving therapy, so you will need to be flexible and creative. Children’s food preferences and tastes may change throughout therapy. Often, numerous small meals are easier to tolerate than three large ones. Children usually are more interested in eating foods that they help prepare. It is important to include your child in the social activity of family meals even if full meals aren’t eaten. Remember, nobody wins food fights—it is best not to force your child to eat. Make sure that foods high in protein and carbohydrates are readily available. Multivitamins, herbs, and all other medicines should be approved by your healthcare team before you give them to your child because they may interact with the chemotherapy medications. A dietitian trained in the energy needs of children with cancer can offer you guidance. The medical staff can intervene if there is a nutritional problem.
n CAN MY CHILD ATTEND SCHOOL DURING TREATMENT? Your child’s ability to attend school will depend on the intensity of the therapy and his or her response to treatment. Some children tolerate chemotherapy and radiation better than others. Your child may not be able to attend school for extended periods because of treatment or hospitalization. However, it is important that your child keep up with his or her
schoolwork. Talk to staff at your child’s school about arranging services, including help from a home tutor, until he or she is able to return to school. You also should discuss school attendance with your child’s doctor. Many pediatric hospitals have school programs that enable children to attend school while hospitalized. School is important because it helps children and adolescents maintain social contact with their peers. Having time with friends will be an important part of your child’s recovery and will ease the adjustment when he or she returns to school. It is important to return your child to school as soon as he or she is medically able to do so.
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