Hemophagocytic Lymphohistiocytosis Patient & Family Handbook

HEMOPHAGOCYTIC LYMPHOHISTIOCYTOSIS A HANDBOOK FOR FAMILIES

Author Ruth Anne Herring, MSN RN CPNP CPON ®

Content Reviewers 2012 Steering Council

ABOUT THIS COVER This cover is specially designed for your child to color and personalize. When your child finishes deco- rating the cover, return it to the clinic or doctor’s office where you received the handbook. Your child’s healthcare provider will then send it to APHON for posting on the APHON website.

This handbook is published by the Association of Pediatric Hematology/Oncology Nurses (APHON) for educational pur- poses only. The material has been developed by sources believed to be reliable. The material is not intended to represent the only acceptable or safe treatment of hemophagocytic lymphohistiocytosis. Under certain circumstances or conditions, additional or different treatment may be required. As new research and clinical experience expand the sources of informa- tion available concerning the treatment of hemophagocytic lymphohistiocytosis, adjustments in treatment and drug therapy may be required. APHON grants the purchaser of this handbook unrestricted permission to photocopy the handbook for educational use by the purchaser or the purchaser’s institution. Purchaser may not alter content or receive monetary gain from distributing photocopies of this product.

APHON makes no warranty, guarantee, or other representation, express or implied, concerning the validity or sufficiency of the treatments or related information contained in this handbook.