Rhabdomyosarcoma Patient & Family Handbook

Rhabdomyosarcoma and Soft Tissue Sarcoma A Handbook for Patients and Families

Author Kelly Laschinger, MSN RN CPNP CPHON®

Parent Reviewer Krisann Stenz

Reviewers Steering Council

Previous Contributors Margaret Bottcher, MN RN CPNP CPON® Violet Shen, MD

David Tishler, MD Ann Watts, RN CNP

This handbook is published by the Association of Pediatric Hematology/Oncology Nurses (APHON) for educational purposes only. The material has been developed by sources believed to be reliable. The material is not intended to represent the only acceptable or safe treatment of rhabdomyosarcoma and soft tissue sarcoma. Under certain circumstances or conditions, additional or different treatment may be required. As new research and clinical experience expand the sources of information available concerning the treatment of rhabdomyosarcoma and soft tissue sarcoma, adjustments in treatment and drug therapy may be required. APHON makes no warranty, guarantee, or other representation, express or implied, concerning the validity or sufficiency of the treatments or related information contained in this handbook. APHON Handbooks for Patients and Families have been developed by healthcare providers who have been educated and currently practice primarily in the United States. APHON acknowledges that treatments and practices presented in this handbook, which are commonly or widely recognized as standard in the United States, may differ from those in other countries. APHON encourages users to defer to their governing body’s preferred treatment and practice methods and healthcare providers’ advice. APHON provides this handbook for educational use. Users may copy and distribute this material in unadapted form only, for noncommercial use, and with attribution given to APHON.

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