Non-Oncologic Blood Disorders Patient & Family Handbook

A Family Guide to Non-Oncologic Blood Disorders

Kostmann Syndrome Connelly, J., A., Choi, S. W., & Levine, J. E. (2012). Hematopoietic stem cell transplantation for severe congenital neutropenia. Cur- rent Opinions in Hematology, 19(1), 44-51. Tankersley, M. S. (2012). Kostmann disease treatment & management. Medscape Reference. Retrieved from http://emedicine. medscape.com/article/887140-overview Krabbe Disease Cruse, R. P. (2014). Krabbe disease. Retrieved from: http://UptoDate.com Leukocyte Adhesion Deficiency Etzioni, A. (2014). Leukocyte adhesion deficiency. UpToDate Reference. Retrieved from http://www.uptodate.com/contents/leuko- cyte-adhesion-deficiency. Roberts, R. L., & Bonilla, F. A. (2014). Primary disorders of phagocytic function: an overview. UpToDate Reference. Retrieved from http://www.uptodate.com/contents/primary-disorders-of-phagocytic-function-an-overview. Metachromatic Leukodystrophy Ikeda, A. K., & Moore, T. (2012). Metachromatic leukodystrophy treatment and management. Retrieved from http://emedicine. medscape.com on 07/07/2014. Osteogenesis Imperfecta Madonia, L. (2012). Osteogenesis imperfecta and bone marrow transplant. Journal of Pediatric Oncology Nursing, 29(1), 37-44. Osteogenesis imperfecta. (2011). Accessed at http://orthoinfo.aaos.org/topic.cfm?topic=A00051 Osteogenesis imperfecta. (2011). Accessed at http://www.childrenshospital.org/health-topics/conditions/osteogenesis-imperfecta Osteogenesis imperfecta. (2013). Accessed at http://www.nichd.nih.gov/health/topics/osteogenesisimp/Pages/default.aspx What is osteogenesis imperfecta? (2009). Accessed at http://www.niams.nih.gov/Health_Info/bone/Osteogenesis_Imperfecta/os- teogenesis_imperfecta_ff.asp Osteogenesis imperfecta treatment and management. (2013). http://emedicine.medscape.com/article/1256726-treat- ment#aw2aab6b6b3 Osteopetrosis Eapen, M., Davies, S. M., Ramsay, N. K., & Orchard, P. J. (1998). Hematopoietic stem cell transplantation for infantile osteopetrosis. Bone Marrow Transplantation, 22(10), 941-946. Tolar, J., Teitelbaum, S. L., & Orchard, P. J. (2004). Osteopetrosis. New England Journal of Medicine, 351(27), 2839-2849. Paroxysmal Nocturnal Hemoglobinuria (PNH) Aplastic Anemia and MDS International Foundation. (2011). Paroxysmal nocturnal hemoglobinuria. Retrieved from http://www. aamds.org Besa, E. (2014). Paroxysmal nocturnal hemoglobinuria. Retrieved from: http://www.emedicine.medscape.com on 7/17/15. Dugdale, D.C., & Mason, J. R. (2010). Paroxysmal nocturnal hemoglobinuria. Retrieved from http://www.nlm.nih.gov on 4/10/2014.

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