A Family Guide to Non-Oncologic Blood Disorders
Stem Cell Transplant Indications • Child has an HLA matched sibling, but some patients also have been transplanted with an unrelated stem cell donor. • Bone marrow failure has progressed. • Patient’s transplant treatments will be adjusted to reduce toxicity and side effects as children with SDS are more sensitive to side effects of treatment.
» » Bone marrow studies as determined by your child’s medical team » » Antibiotics may be needed if your child’s white blood cell count is too low as they can’t fight infec- tions as well.
• Other possible treatments:
» » Surgery to help treat problems with your child’s skeleton Your medical team will determine the best treatment plan for your child. How successful is the treatment? Many of these treatments help manage problems but do not cure the disease. Many treatments help support the sympo- toms of the disease. SCT is the only curative option.
Notes from Your Child’s Medical Team
Shwachman-Diamond Syndrome
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