Aplastic Anemia Patient & Family Handbook

treatments. However, it is important that even during these times your child keeps up with his or her schoolwork. Talk with your child’s healthcare team and school about arranging for homebound services, including a tutor, until he or she is able to return to school. Many children’s hospitals have school pro- grams that allow patients to attend school while hospitalized. These programs often help coordinate home tutors and obtain homework and schoolwork. Discuss your child’s ability to attend school with the healthcare team. Some children are able to attend school between hospitalizations or treatments and to use homebound services. The healthcare team can help coordinate the school services your child needs. When a child returns to school for the first time after starting treatment or at the end of therapy, many healthcare teams go to the school to educate teachers and students prior to a student’s return. Once your child does return to school, the healthcare team can continue to assist you with getting any special services your child may need.

n BIBLIOGRAPHY

Bacigalupo, A. (2017). How I treat acquired aplastic anemia. Blood, 129 (11), 1428–1436. Marsh, J. C., & Kulasekararaj, A. G. (2013). Management of the refractory aplastic anemia patient: what are the options?. ASH Education Program Book, 2013 (1), 87–94. Scheinberg, P. (2018). Activity of eltrombopag in severe aplastic anemia. Blood advances, 2 (21), 3054–3062. Scheinberg, P., & Young, N. S. (2012). How I treat acquired aplastic anemia. Blood, 120 (6), 1185–1196. Townsley, D. M., et al. (2017). Eltrombopag added to standard immunosuppression for aplastic anemia. New England Journal of Medicine, 376 (16), 1540–1550. Williams, D. A., et al. (2014). Diagnosis and treatment of pediatric acquired aplastic anemia (AAA): An initial survey of the North American Pediatric Aplastic Anemia Consortium (NAPAAC). Pediatric Blood & Cancer, 61 (5), 869–874.

n IMPORTANT PHONE NUMBERS

n NOTES

12

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