Retinoblastoma Patient & Family Handbook

HOW CAN I WORK WITH THE HEALTHCARE TEAM?

The care of your child requires a team approach. You are a key player on your child’s healthcare team. You know your child better than anyone else, and your input is important. Other members of your child’s healthcare team include doctors, nurses, pharmacists, and social workers. Always communicate openly with the members of your child’s healthcare team. If there is anything you are not sure about, ask the team. Write down your questions as you think of them, so you’ll remember to ask them during your next meeting with your child’s healthcare team. Important questions you may want to ask: What stage is the disease and what does that mean? What treatment choices are available? What treatment do you recommend and why?

What are the risks or side effects during the treatment? What are the risks and side effects after the treatment? What are my child’s chances for survival? What are the chances for recurrence/relapse? What financial or social resources are available to help my family?

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