Thalassemia Patient & Family Handbook

Thalassemia A HANDBOOK FOR FAMILIES

Authors Helene Greenberg, BSN RN Joana Duran, MSN CPNP CNS Beth Savage, MSN RN CNL CPON ® Lori Vertz, MSN RN CNL CPON ®

Content Reviewers 2020 Steering Council

This handbook is published by the Association of Pediatric Hematology/Oncology Nurses (APHON) for educa- tional purposes only. The material has been developed by sources believed to be reliable. The material is not intended to represent the only acceptable or safe treatment of thalassemia. Under certain circumstances or conditions, additional or different treatment may be required. As new research and clinical experience expand the sources of information available concerning the treatment of thalassemia, adjustments in treatment and drug therapy may be required. APHON makes no warranty, guarantee, or other representation, express or implied, concerning the validity or sufficiency of the treatments or related information contained in this handbook. APHON provides this handbook for educational use. Users may copy and distribute this material in unadapted form only, for noncommercial use, and with attribution given to APHON.