Transition Position Paper

Saulsberry, A. C., Partanen, M., Porter, J. S., Podila, P. S. B., Hodges, J. R., King, A. A., Wang, W., Zhao, X., Kang, G., Jacola, L. M., & Hankins, J. S. (2019). Neurocognitive impairment predicts poor transition outcomes among patients with sickle cell disease. Blood , 134 (Supplement_1), 519. https://doi.org/10.1182/blood-2019-121617 Saulsberry-Abate, A. C., Partanen, M., Porter, J. S., Podila, P. S. B., Hodges, J. R., King, A. A., Wang, W. C., Schreiber, J. E., Zhao, X., Kang, G., Jacola, L. M., & Hankins, J. S. (2021). Cognitive performance as a predictor of healthcare transition in sickle cell disease. British Journal of Haematology , 192 (6), 1082–1091. https://doi.org/10.1111/bjh.17351 Sawicki, G. S., Garvey, K. C., Toomey, S. L., Williams, K. A., Hargraves, J. L., James, T., Raphael, J. L., Giardino, A. P., Schuster, M. A., & Finkelstein, J. A. (2017). Preparation for transition to adult care among Medicaid-insured adolescents. Pediatrics , 140 (1), e20162768. https://doi.org/10.1542/peds.2016-2768 Sedrak, A., & Kondamudi, N. P. (2020). Sickle cell disease . StatPearls. https://www.ncbi.nlm.nih.gov/books/NBK482384/ Sharma, N., O’Hare, K., O’Connor, K. G., Nehal, U., & Okumura, M. J. (2018). Care coordination and comprehensive electronic health records are associated with increased transition planning activities. Academic Pediatrics , 18 (1), 111–118. https://doi.org/10.1016/j. acap.2017.04.005

Sobota, A., Neufeld, E. J., Sprinz, P., & Heeney, M. M. (2011, June). Transition from pediatric to adult care for sickle cell disease: Results of a survey of pediatric providers. American Journal of Hematology 86 (6), 512–515. https://doi.org/10.1002/ajh.22016 Strouse, J. (2016). Sickle cell disease. In M. J. Aminoff, F. Boller, & D. F. Swaab (Eds.), Neuroepidemiology (pp. 311–324). Elsevier. https://doi.org/10.1016/b978-0-12-802973-2.00018-5 Treadwell, M., Johnson, S., Sisler, I., Bitsko, M., Gildengorin, G., Medina, R., Barreda, F., Major, K., Telfair, J., & Smith, W. R. (2015). Self- efficacy and readiness for transition from pediatric to adult care in sickle cell disease. International Journal of Adolescent Medicine and Health , 28 (4), 381–388. https://doi.org/10.1515/ijamh-2015-0014 Wastnedge, E., Waters, D., Patel, S., Morrison, K., Goh, M. Y., Adeloye, D., & Rudan, I. (2018). The global burden of sickle cell disease in children under five years of age: A systematic review and meta-analysis. Journal of Global Health , 8 (2), 1–13. https://doi. org/10.7189/jogh.08.021103 White, P. H., Cooley, W. C., Transitions Clinical Report Authoring Group, American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians. (2018). Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics , 142 (5), e20182587. https://doi. org/10.1542/peds.2018-2587

DISCLAIMER The Association of Pediatric Hematology/Oncology Nurses (APHON) and the American Society of Pediatric Hematology/ Oncology (ASPHO) publish their position statements as a service to their members to promote awareness of certain issues. The information contained in this position statement is neither exhaustive nor inclusive of all circumstances or individuals. Such variables as institutional human resource guidelines; federal and state rules, regulations, and statutes; and regional environmen- tal conditions may affect the relevance of these recommendations and the approaches to their implementation. APHON and ASPHO advise their members and others to carefully and independently consider each recommendation (including the appli- cability of that recommendation to any particular circumstance or individual). The position statement should not be relied upon as an independent basis for care but rather be considered as a resource. Moreover, no opinion is expressed herein regarding the quality of care that adheres to or differs from the guidance given in this position statement. APHON and ASPHO reserve the right to rescind or modify their position statements at any time.